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Presidential Commission for the Study of Bioethical Issues, Privacy and Progress in Whole Genome Sequencing (Oct. 2012) (full-text).
In this report, the Commission assessed how to reconcile expected societal benefit from advances in whole genome sequencing with privacy risks that fall to the individuals who share their genomic data. It concludes that to realize the enormous promise that whole genome sequencing holds for advancing clinical care and the greater public good, individual interests in privacy must be respected and secured.