The Health Privacy Project (HPP) was founded in 1997 at the Center for Democracy and Technology (CDT). The mission of HPP was to foster greater public trust and confidence in the health care system. HPP played an instrumental role in helping to shape the Health Insurance Portability and Accountability Act of 1996 (HIPAA) Privacy Rule and was active in monitoring the Rule's enforcement, as well as in promoting confidentiality policies and practices in the development of health information exchange networks.
The HPP was folded into CDT in March 2008.
In 2014, the HPP left CDT and was independently managed by Christopher Rasmussen, a former Policy Analyst with the HPP while it was at CDT.
The HPP conducted pioneering research and analysis on a wide array of health privacy issues. Notable HPP publications include:
- Best Principles for Health Privacy (1999)
- Report on the Privacy Policies and Practices of Health Web Sites (2000)
- "Virtually Exposed: Privacy and E-Health" (2000), published in Health Affairs
- Exposed Online: Why the New Federal Health Privacy Regulation Doesn't Offer Much Protection to Internet Users (2001)
- The State of Health Privacy: Volumes 1 and 2 (2d ed. 2002); and
- Implementing the Federal Health Privacy Regulation in California (2002).